The General Chat Thread (2024)?

TastyReuben said:
Ahhhhh, the plight of the international traveler. I feel the same when we go somewhere and I can’t get ranch dressing! :laugh:



That’s an actionable offense - no court would convict you… :whistling:
Click to expand...
As he's just brought me another cup of tea and a very pleasant chicken and tomato sandwich (god I love the tomatoes out here) just this once I'll give him a pass 😆
 
SandwichShortOfAPicnic said:
An emergency situation has arisen, there are only 8 teabags left 😱
Only 8 cups of tea between now and tomorrow morning when I'll hopefully be recovered enough to ride over to the Brit supermarket.
I'm in shock, how can I have let this happen.
Panic Mr Mainwaring PANIC 😆
Click to expand...
Something similar happened during covid lockdown with my parents. They had brought enough of their preferred tea (Ringtons Gold isn't available in Australia at all) with them for the 6 weeks they were due to be with us. It was at week 5 that the lock down started with Singapore airport closing to transit passengers.

After a couple of weeks both parents were pretty depressed and worried, so I placed an internet order with the New Zealand branch of Ringtons. Not knowing how many tea bags to buy I bought 4 boxes of 100. The shipping cost almost as much as the tea bags did, but the joy it brought to them when the tea arrived a few weeks later was fantastic to see. I spent maybe NZ$75 (£35) in total. They actually ended up taking some of those tea bags back to the UK in August when the 6th attempt at getting them home finally succeeded.
 
SatNavSaysStraightOn said:
Something similar happened during covid lockdown with my parents. They had brought enough of their preferred tea (Ringtons Gold isn't available in Australia at all) with them for the 6 weeks they were due to be with us. It was at week 5 that the lock down started with Singapore airport closing to transit passengers.

After a couple of weeks both parents were pretty depressed and worried, so I placed an internet order with the New Zealand branch of Ringtons. Not knowing how many tea bags to buy I bought 4 boxes of 100. The shipping cost almost as much as the tea bags did, but the joy it brought to them when the tea arrived a few weeks later was fantastic to see. I spent maybe NZ$75 (£35) in total. They actually ended up taking some of those tea bags back to the UK in August when the 6th attempt at getting them home finally succeeded.
Click to expand...
Now you see that's proper compassion right there that is!
 
The weather was fantastic, almost no wind, sunny, between 20-25C midday,cooler mornings and evenings, plus the sea scent.
20240406_111156.jpg
20240406_090629.jpg
20240405_154909.jpg
 
Talked to my GI specialist, basically there are three possible scenarios now:
1) I 'm getting a booster triple infusion of the Stelara and it starts working again. That will be this week.
2) Stelara doesn't start working again and I get a starter dose of the alternative medicine that is still available. This is the final option, after that there is nothing but prednisone until a new med is released on the market.
3) Alternative medicine does not work and I am on prednisone for possibly months or years. Absolutely not a pleasant scenario.

So.. all I can do is hope and keep the faith 🙏
 
Last edited:
Windigo said:
Talked to my GI specialist, basically there are three possible scenarios now:
1) I 'm getting a booster drie infusion of the Stelara and it starts working again. That will be this week.
2) Stelara doesn't start working again and I get a starter dose of the alternative medicine that is still available. This is the final option, after that there is nothing but prednisone until a new med is released on the market.
3) Alternative medicine does not work and I am on prednisone for possibly months or years. Absolutely not a pleasant scenario.

So.. all I can do is hope and keep the faith 🙏
Click to expand...
Fingers crossed for you.
Gut problems are awful.
Wasn't lupus on the cards for a while?
Have they tried Lupus treatments? Antimalarials and the like?

I'm sure they have but it's worth the question.
 
At midday, the cold front arrived and I watched the temperature gauge literally drop 5°C in 5 minutes. By 2pm, it was down to 6°C where it had remained all day. It's now 4°C and we've no heating because the wood stove had yet to be serviced. It was booked back in January. We can't use it because a seal needs replacing to stop the smoke coming through the door.

Today's outside temperature.... the time is on the x axis though it's showing weird times...

Screenshot_20240409_211045_Ecowitt.jpg


It's due to be 2°C in the morning, so I'm going to use the summer weight 4.5tog quilt tonight instead of the cotton 1 tog quilt I was on last night. Menopause is a bitch.
 
SatNavSaysStraightOn said:
At midday, the cold front arrived and I watched the temperature gauge literally drop 5°C in 5 minutes. By 2pm, it was down to 6°C where it had remained all day. It's now 4°C and we've no heating because the wood stove had yet to be serviced. It was booked back in January. We can't use it because a seal needs replacing to stop the smoke coming through the door.

Today's outside temperature.... the time is on the x axis though it's showing weird times...

View attachment 112131

It's due to be 2°C in the morning, so I'm going to use the summer weight 4.5tog quilt tonight instead of the cotton 1 tog quilt I was on last night. Menopause is a bitch.
Click to expand...
Yes it is.
I've had an easy ride of menopause (more on that below) but it's really messed with my two bezzies lives in the extreme 😔

So I seemed to have skipped all the hassles apart from a bit of rosacea, or so I thought.. except I hadn't.
I was waking up every morning with joint pain, reaching for pain killers, felt like an 80yr old, it was taking me forever to get going.

But I remember my mum being convinced her joint pain and subsequent various arthritis diagnosis was triggered by menopause.
Tbh at the time that wasn't a thing so she was dismissed by the old school medics and sent away.

Eventually this January I went to the GP about the joint pain and told her about my mum.

She said well it can cause that, would you like to try a bit of hrt?
I said no not really. I'd got away without the problems people complain about and I didn't want to go back to all that.. but the joint pain was wearing me out so maybe I should try a really low dose?

It's 80% gone! Oww isn't the first thing I think when I wake up, I get up a go n do things, it's quite miraculous.

I know your health circumstances are completely different but I thought I should mention it.
 
SandwichShortOfAPicnic said:
Fingers crossed for you.
Gut problems are awful.
Wasn't lupus on the cards for a while?
Have they tried Lupus treatments? Antimalarials and the like?

I'm sure they have but it's worth the question.
Click to expand...
Yes they tested me for that but the results don't show the required blood markers for it, though I do have a lot of similar symptoms. So the test was inconclusive and they've just resumed considering all of my symptoms Crohns related. In the end it doesn't matter much, they require similar treatments medication wise so the name is less relevant than it seems.

I wish it were just my gut though, unfortunutely severe Crohns can manifest everywhere in the body and I am a prime example of that.
I'm getting my infusion on friday so fingers crossed indeed 🙏
 
Windigo said:
Talked to my GI specialist, basically there are three possible scenarios now:
1) I 'm getting a booster triple infusion of the Stelara and it starts working again. That will be this week.
2) Stelara doesn't start working again and I get a starter dose of the alternative medicine that is still available. This is the final option, after that there is nothing but prednisone until a new med is released on the market.
3) Alternative medicine does not work and I am on prednisone for possibly months or years. Absolutely not a pleasant scenario.

So.. all I can do is hope and keep the faith 🙏
Click to expand...
Like and sad emojis. Keeping you in my thoughts and well wishes!
 
SandwichShortOfAPicnic said:
Yes it is.
I've had an easy ride of menopause (more on that below) but it's really messed with my two bezzies lives in the extreme 😔

So I seemed to have skipped all the hassles apart from a bit of rosacea, or so I thought.. except I hadn't.
I was waking up every morning with joint pain, reaching for pain killers, felt like an 80yr old, it was taking me forever to get going.

But I remember my mum being convinced her joint pain and subsequent various arthritis diagnosis was triggered by menopause.
Tbh at the time that wasn't a thing so she was dismissed by the old school medics and sent away.

Eventually this January I went to the GP about the joint pain and told her about my mum.

She said well it can cause that, would you like to try a bit of hrt?
I said no not really. I'd got away without the problems people complain about and I didn't want to go back to all that.. but the joint pain was wearing me out so maybe I should try a really low dose?

It's 80% gone! Oww isn't the first thing I think when I wake up, I get up a go n do things, it's quite miraculous.

I know your health circumstances are completely different but I thought I should mention it.
Click to expand...
That is interesting. They diagnosed me with perfiferal spondiloatrirtis (joint pain through Crohns) but I have PCOS too.. If it had such dramatic effects on your pain levels, I will discuss this with my doctor too. Thanks for the suggestion!
 
medtran49 said:
Like and sad emojis. Keeping you in my thoughts and well wishes!
Click to expand...
I echo medtran49 .
One of my best friend's sons has Crohn's disease. He's a gynaecologist; obviously, as a doctor, he's got access to every possible solution and yet, it's still a problem because it needs to be managed. These days, there are many, many options to control it; it's a question of finding the right medication. Just keep looking and be strong. 😍
 
You must log in or register to reply here.
Back
Top Bottom